Showing posts with label autism spectrum disorder. Show all posts
Showing posts with label autism spectrum disorder. Show all posts

Tuesday, July 3, 2018

Autism and homelessness




The researchers* found evidence suggesting that autistic adults are over-represented among the homeless population. They have called for more research to understand the links between autism and homelessness, to help prevent autistic people becoming homeless and to improve support for those who are already homeless.
Existing research & method
Anecdotal reports from autism clinicians and keyworkers, as well as two small studies from a few years ago, have suggested that there may be high numbers of autistic people in the homeless population. But this is the first academic research looking at this issue properly.
The researchers attempted to fill this gap by gathering initial evidence about the prevalence of autistic traits in homeless people. They worked with one homeless outreach team is the UK and screened 106 people they support to see if they could be autistic.
Results & discussion
12.3% of homeless people had a range of autistic 'traits' in line with diagnostic criteria. This is substantially higher than the general population autism prevalence of 1%. It is not clear that this 12% were actually autistic, but the screening suggested that they could be.
Writing in the journal, Autism, the researchers said: "If autistic difficulties are common among homeless populations, then this has important implications. Many people are homeless in the United Kingdom; the most recent estimate is that there are almost 5000 rough sleepers at any one point (Ministry of Housing, Communities and Local Government, 2017), and there is a much larger group of people with no stable accommodation who are termed the 'hidden homeless' (Crisis, 2017). There may therefore be a considerable number of homeless autistic adults who are not having their needs met and who are in an extremely vulnerable position."

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Alasdair Churchard has a doctorate in Clinical Psychology from University College London and worked on this study alongside Morag Ryder, William Mandy and Andrew Greenhill. He said: "Our research shows that autistic people may be at higher risk of becoming homeless than the general population.
"It is well-known that life for homeless people is extremely mentally and physically hard, and those who are autistic are likely to have additional vulnerabilities which would only make their lives more difficult.
"Further research is required in this area, and we have been working with professionals in the homelessness field to raise awareness about the potential links between autism and homelessness."
Sarah Lambert, Head of Policy at the National Autistic Society, said: "This is an important and robust study, which suggests that there could be a significant number of autistic adults who are homeless - and potentially living without an understanding of their needs or appropriate support.
"It's well established that many autistic people struggle to get the support they need and face huge difficulties throughout their lives, including high rates of mental health problems, underemployment and social isolation. We've heard anecdotal reports of autistic adults falling through gaps in support and into homelessness but there's very little research into this or awareness of this as an issue.
"This is the first peer-reviewed study to provide initial evidence of a link between autism and homelessness and provides an important platform to get to grips with this issue. We now need further research to investigate this link, and to develop the right support for homeless autistic people and to prevent those at risk from falling into homelessness in the first place."
"Homeless autistic people have gone unrecognised and unsupported for far too long."
Case study
Dr. Andrew Greenhill, a clinical psychologist also involved in the research, said: "One person that stands out for me is an older man who had lived on the street for 45 years, in an inner city.
"He ran away from his family home because his relationship with his father was so poor and physically abusive. He then survived by following a regular routine and sleeping in the same place every night, relying on the food made available at day-centres and drop ins. He refused all professional help or contact, and existed in a 'bubble' whereby he refused all attempts to engage. It was clear that he found social engagement of any kind very distressing and was highly motivated to avoid this.
"Eventually he was admitted to hospital after it appeared he'd had a stroke, and was unable to care for himself. He eventually accepted a room in a low intensity 'cottage hotel' hostel, where there were few, if any expectations about things like form filling, attending meetings or assessments. He has since managed to maintain his preference for privacy and solitude whilst having his basic needs met, with support workers around to keep an eye on him and to help out if any difficulties arise."
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Read an article about the research on the Conversation website and access the full research paper in the Autism Journal.
*The research was carried out by Alasdair Churchard, alongside Morag Ryder and William Mandy from University College London and Andrew Greenhill from Kensington & Chelsea Learning Disability Service.
Disclaimer: AAAS and EurekAlert! are not responsible for the accuracy of news releases posted to EurekAlert! by contributing institutions or for the use of any information through the EurekAlert system.

Wednesday, April 4, 2018

April Is Autism Awareness Month. Understanding the basics, Pt.1.

Autism spectrum disorder (ASD) is a developmental disorder that affects communication and behavior. Although autism can be diagnosed at any age, it is said to be a “developmental disorder” because symptoms generally appear in the first two years of life.


According to the Diagnostic and Statistical Manual of Mental Disorders (DSM-5), a guide created by the American Psychiatric Association used to diagnose mental disorders, people with ASD have:
  • Difficulty with communication and interaction with other people
  • Restricted interests and repetitive behaviors
  • Symptoms that hurt the person’s ability to function properly in school, work, and other areas of life
Autism is known as a “spectrum” disorder because there is wide variation in the type and severity of symptoms people experience. ASD occurs in all ethnic, racial, and economic groups. Although ASD can be a lifelong disorder, treatments and services can improve a person’s symptoms and ability to function. The American Academy of Pediatrics recommends that all children be screened for autism. All caregivers should talk to their doctor about ASD screening or evaluation.

Signs and Symptoms of ASD

People with ASD have difficulty with social communication and interaction, restricted interests, and repetitive behaviors. The list below gives some examples of the types of behaviors that are seen in people diagnosed with ASD. Not all people with ASD will show all behaviors, but most will show several.

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Social communication / interaction behaviors may include:
  • Making little or inconsistent eye contact

  • Tending not to look at or listen to people

  • Rarely sharing enjoyment of objects or activities by pointing or showing things to others

  • Failing to, or being slow to, respond to someone calling their name or to other verbal attempts to gain attention

  • Having difficulties with the back and forth of conversation

  • Often talking at length about a favorite subject without noticing that others are not interested or without giving others a chance to respond

  • Having facial expressions, movements, and gestures that do not match what is being said

  • Having an unusual tone of voice that may sound sing-song or flat and robot-like
  • Having trouble understanding another person’s point of view or being unable to predict or understand other people’s actions

Restrictive / repetitive behaviors may include:

  • Repeating certain behaviors or having unusual behaviors. For example, repeating words or phrases, a behavior called echolalia

  • Having a lasting intense interest in certain topics, such as numbers, details, or facts

  • Having overly focused interests, such as with moving objects or parts of objects

  • Getting upset by slight changes in a routine

  • Being more or less sensitive than other people to sensory input, such as light, noise, clothing, or temperature
People with ASD may also experience sleep problems and irritability. Although people with ASD experience many challenges, they may also have many strengths, including:
  • Being able to learn things in detail and remember information for long periods of time

  • Being strong visual and auditory learners

  • Excelling in math, science, music, or art

Causes and Risk Factors

While scientists don’t know the exact causes of ASD, research suggests that genes can act together with influences from the environment to affect development in ways that lead to ASD. Although scientists are still trying to understand why some people develop ASD and others don’t, some risk factors include:
  • Having a sibling with ASD
  • Having older parents
  • Having certain genetic conditions—people with conditions such as Down syndrome, fragile X syndrome, and Rett syndrome are more likely than others to have ASD
  • Very low birth weight

Diagnosing ASD

Doctors diagnose ASD by looking at a person’s behavior and development. ASD can usually be reliably diagnosed by the age of two. It is important for those with concerns to seek out assessment as soon as possible so that a diagnosis can be made, and treatment can begin.

Diagnosis in Young Children

Diagnosis in young children is often a two-stage process.

Stage 1: General Developmental Screening During Well-Child Checkups

Every child should receive well-child check-ups with a pediatrician or an early childhood health care provider. The American Academy of Pediatrics recommends that all children be screened for developmental delays at their 9-, 18-, and 24- or 30-month well-child visits and specifically for autism at their 18- and 24-month well-child visits. Additional screening might be needed if a child is at high risk for ASD or developmental problems. Those at high risk include children who have a family member with ASD, have some ASD behaviors, have older parents, have certain genetic conditions, or who were born at a very low birth weight.
Parents’ experiences and concerns are very important in the screening process for young children. Sometimes the doctor will ask parents questions about the child’s behaviors and combine those answers with information from ASD screening tools, and with his or her observations of the child. Read more about screening instruments on the Centers for Disease Control and Prevention (CDC) website.
Children who show developmental problems during this screening process will be referred for a second stage of evaluation.

Stage 2: Additional Evaluation

This second evaluation is with a team of doctors and other health professionals who are experienced in diagnosing ASD.
This team may include:
  • A developmental pediatrician—a doctor who has special training in child development
  • A child psychologist and/or child psychiatrist—a doctor who has specialized training in brain development and behavior
  • A neuropsychologist—a doctor who focuses on evaluating, diagnosing, and treating neurological, medical, and neurodevelopmental disorders
  • A speech-language pathologist—a health professional who has special training in communication difficulties
The evaluation may assess:
  • Cognitive level or thinking skills
  • Language abilities
  • Age-appropriate skills needed to complete daily activities independently, such as eating, dressing, and toileting
Because ASD is a complex disorder that sometimes occurs along with other illnesses or learning disorders, the comprehensive evaluation may include:
  • Blood tests
  • Hearing test
The outcome of the evaluation will result in a formal diagnosis and recommendations for treatment.

Source: NIH